Breast Cancer Registry

The Breast Cancer Collaborative Registry (BCCR) is the first major project of the Northern Great Plains Personalized Breast Cancer Program through the Northern Great Plains Oncology Network.

The BCCR was launched in 2007 by the Eppley Cancer Center, now the Fred & Pamela Buffett Cancer Center. In 2011, the Avera Cancer Institute became a collaborating site in the BCCR, in partnership with the Avera Research Institute.

The BCCR is a database and biospecimen bank which collects very specific medical information and biological samples from participants who have a personal history of breast cancer, a family history of breast cancer, or a high risk of developing breast cancer. While cancer registries are commonplace across the nation, the BCCR is unique in the fact that it is backed up by biological samples, including blood and tissue samples.
 
The patient biospecimens will be used for research on biomarkers of the risk of developing breast cancer, as well as markers of prognosis. The total genomic information will also be used to help oncologists provide personalized cancer care.

The BCCR involves nine collaborating sites throughout the Midwest. To date, data on more than 16,000 individuals are part of the BCCR.

The BCCR is already a critical resource for research studies, and the possibilities for future research studies are endless. One such study is looking at a group of breast cancer patients who all tested negative for BRCA 1 and 2 to search for another genetic variant that has yet to be discovered.
 
Those who may qualify for inclusion in the BCCR meet with a research nurse to consent to participate. They then complete a questionnaire with details about their medical history; lifestyle; sleep, diet and exercise habits; and environmental exposure. Patients also have the option of whether or not to provide a blood sample and donate a biospecimen of their tumor tissue, if applicable. Participants have the satisfaction of knowing that they are helping to further the medical science behind breast cancer care, and are impacting breast cancer patients of the future – perhaps even their own daughters or granddaughters.

Learn more about participating in the BCCR

Fred and Pamela Buffett Cancer Center:
Liz Fleissner, RN, BSN
Clinical Study Nurse Coordinator,
Phone:  402-559-8197
Toll free:  800-642-1095 ext. 98197
 Email: eafleissner@unmc.edu

Avera Cancer Institute:
Heidi Nickles, MS
Phone: 605-322-3295
Email: heidi.nickles@avera.org.
 
Click here to read the informed consent that participating patients sign